Man who discovered he had brain tumour after having seizure on commute to take on charity swim

Rory Burke, 50, is taking part in the Brain Tumour Research charity’s Swim Challenge In August.

He was diagnosed with an oligodendroglioma brain tumour in February 2012 after having a seizure while driving to work.

Rory said: “I only realised what had happened when I came round and discovered I had mounted the pavement. I felt disorientated, but decided to drive home, as I knew something wasn’t quite right.

“When I got home, it happened again but this time I was fitting, and an ambulance was called. It wasn’t until a few days later that I woke up, alone and confused in intensive care in Hull Royal Infirmary.”

Rory had a CT scan which revealed a mass on his brain.

“I’m a very black and white type of person and the news that I had a tumour shocked me a little, but my main emotion was acceptance", he added.

"I really just tried to stay positive.

"Not everyone who is diagnosed with a brain tumour has options, so when the doctors went through the different treatments available to me, I felt lucky that there was something that could be done.”

Rory’s neurologist advised that surgery was needed but, because the tumour was close to his motor strip, he would need to have an awake craniotomy.

This is an operation in which the patient is given a general anaesthetic, so they are completely unconscious whilst the neurosurgeon gains access to the brain through the skull.

Once the neurosurgeon is ready to operate on the tumour, the patient is woken up and asked to perform simple tasks such as speaking, moving their hands, feet and other basic neurological tests.

The operation in March 2012 had to be stopped mid-way through the procedure because Rory had a seizure.

The rescheduled operation took place in April.

He said: “During the operation I experienced around 15 seizures as I lay there awake on the table. They asked me questions and checked if I could feel and move parts of my body. It was a very weird experience."

In January 2016, a routine CT scan revealed the remaining tumour was beginning to grow again, so Rory opted to have chemotherapy and radiotherapy.

He decided to leave his job in recruitment because of his epilepsy, and to focus on his recovery.

Since then, he has raised more than £7,000 for Brain Tumour Research by taking part in cycling challenges.